MS symptoms

This is this week alone

March 27th -28th, 2007

Symptoms?
Should I list them all??
I will start with the head and work my way down.

Migraines, constant headache since 1993
Neck pain/stiffness
Tinitus [ringing in ears]
partially deaf
trigeminal neuralgia [nose tip]
optic neuritis [eye pain--stabbing]
vertigo w/nystagmus [spinning vertigo]
difficulty swallowing
arm pain and muscle weakness [more left side]
numbness/loss of sensation digits left hand
numbness/pain palm right hand
trunk pain [when extended or turning]
reflux [heartburn]
bloating [abdomen]
cystitis [bladder]
constipation/bowel pain
hip pain [severe/right hip]
knee pain [right side/need knee replacement surgery]
difficulty walking [can do about 400 feet]
neuropathy in both feet
burning pain both lower legs and feet
lower back pain
constant humming [like a low voltage current following my nerve pathways]
mental confusion
short term memory loss
long term memory loss
poor balance
lack of coordination
dizziness
insomnia [due to pain]
absolute exhaustion [goes way beyond being tired]
depression

I think that might be a complete list.
I may have forgotten one or two symptoms
My symptoms take up an average of 23 days each month, IF I AM LUCKY I get 5 good functioning days a month. The rest of the time is filled with the symptoms listed above.

~Sharon
suffering quietly in the corner.

I just want to scream

I just want to scream or cry or run around like a crazy person ripping my hair out of my head. My right leg hurts so bad, I can’t even sleep.

The pain meds they gave me don’t do shit!

I feel like my knee is just going to crumble and I will be stuck wherever I happen to fall until someone comes home and finds me.

So I just don’t much feel like writing today…so I won’t

TaTa

Hell week OR Driving to Durham

Okay…

The plan was to be ready to leave Wilmington by 5:30PM. We had a room reserved at the Red Roof Inn [because they allow pets and we HAD to take the puppy with us! LOOOONG story]

At 4PM my daughter called, she was ready to be picked up at school. So I harness and leash the puppy and go out to the car, my keys and wallet in one hand, leash and puppy in the other.

There is a young lady walking her ‘skittish’ pit bull. I hurry to get the puppy into the car, unlock front door so I can unlock the back door to put the puppy in the car. Set keys and wallet on the front seat.Close the front door. Put the puppy in the back seat. Close the door.

Say OH SHIT as I realize I just locked my self out of the car and locked the puppy in. CRAP! I actually attempted to get the dog to step on the button that would unlock the door, I probably wasted a good 15 minutes doing this.

Girl with pitbull comes by again. Offers to let me use her cellphone.

WELL, It’s the least she could do!!

I call my daughter’s cellphone and get her voice mail. Leave her a message…locked dog and keys in car…blah,blah,blah….stuck in driveway…blahblah,blah…..call Dad at work….blah,blah, blah…..see you when you get here….blah,blah,blah

Thank girl with stupid dog.

Another 20 minutes goes by, still bribing dog to step on button, wondering if any of my creepy neighbors are secretly peepeing at me and laughing their asses off.

Daughters shows up, got ride from friend’s Mom….who is now parked at the end of my driveway asking if there is anything she can do to help and knowing I will be the #1 topic of conversation at their dinner table tonight.

“Oh HAHA Let me tell you what Erica’s stupid-ass Mom did today HaHa!!!”

Call Greg at work…he says, “well, I am leaving here in about 10 minutes and it takes a good half hour to drive home and IT IS Friday afternoon rush hour in downtown Wilmington…so I’ll see you when I get there!”

Did I tell you it was freakin’ cold out and windy!!!

Another 45 minutes goes by, spent listening to my daughter complain about how cold it is and for the 50th time hearing her say

“I can’t believe YOU LOCKED THE DOG IN THE CAR!!!!!”

Finally Greg shows up and unlocks my car. YAY!! The poor innocent puppy is saved!!

What about the poor freezing-her-ass-off MOMMY!??

So now we go inside. Luckily I am already packed. And I packed for the dog too. Greg is packed, he packed 3 days ago. He’s just like that, I don’t have enough time to explain. Erica hasn’t even thought about packing, so she is just throwing a bunch of crap into a suitcase.

We are still on schedule and leave around 5:30PM

It’s 300 miles to Durham.

How many times did I have to listen to them mocking me for locking the poor dog in the car??? I stopped counting after 10!!

The motel sucked, the bed sucked, the pillows sucked, the dog barked at every little sound, I finally fell asleep at 4AM so I could wake up at 6AM!!

The shower was awesome.

And I was very glad to be back home at 6PM on Saturday

Spent all day Sunday in bed. MS makes you very tired and if you use up your reserves, you sleep, you don’t even get to decide if you want to sleep or not…your body just does it.

March 17th 2007

A lot has happened since my last post.

We drove 600 miles to take our 16 years old daughter to Discovery Day at The North Carolina School Of Science and Math. It is a boarding school in Durham NC

Before you get your knickers in a bunch

It is a FREE boarding school, payed for by donations and grants and benefactors.

We wait now ’til April 13th to see if she has been invited to attend.

We are all very hopeful that she will be able to go there. It is an awesome opportunity for her future/college/career.

NCSSM

Middle aged woman…HIT SONG

THIS is a freakin’ riot!!

If you are under 25 play this or send it to your Mom

She’ll probably kill you but you will be laughing as she does it!

Middle Aged Woman

Thanks to JibJab for the link 

here are the lyrics:

MIDDLE AGED WOMAN

I’M A MIDDLE AGED WOMAN, AND I’M REALLY IN MY PRIME
I’M A MIDDLE AGED BROAD, AND I’M LOOKING MIGHTY FINE
MATURE AND SEXY, HEALTHY AND FIT
NICE AND RIPE, AND I CAN’T REMEMBER SHIT

I’M IRRITABLE AND CRABBY, AND MY MOOD IS ON THE SWING
MY CYCLES ARE IRREGULAR, AND MY UNDERWEAR CLINGS
MY THERMOSTAT HAS REALLY GONE AWRY
I’M SWEATING LIKE A PIG, WHILE MY CHA CHA IS TOTALLY DRY

I’M PERIMENOPAUSAL, AND I CAN’T REMEMBER SQUAT
THERE’S A RINGING IN MY EARS, AND I TEND TO FART A LOT
A 5 O’CLOCK SHADOW WASN’T IN MY PLANS
AND EVERYTIME I SNEEZE, I FRICKING PEE MY PANTS

I CAN’T SLEEP THROUGH THE NIGHT, MY LIBIDO’S OUT OF WHACK
I’VE GOT BIFOCAL CONTACTS, AND I’M SWEATING MORE THAN SHAQ
I’M FEELING REALLY ANXIOUS, MAYBE I COULD SCORE SOME CRACK
OR DRINK SOME BLACK COHOSH TEA

I’M A MIDDLE AGED WOMAN, I SUDDENLY DON’T REMEMBER WHO YOU ARE
I MUST BE A MUSICIAN, ‘CAUSE I’M PLAYING A GUITAR
YES, I’M MIDDLE AGED, HERE ON THIS STAGE
I’M MIDDLE AGED, COMPLETELY CRAZED
I’M A MIDDLE AGED….
(DON’T MESS WITH MY SOCIAL SECURITY!)
MIDDLE AGED WOMAN!

48

That's how old I'll be on my next birthday

June 20th [620]

Think of me whenever you see those numbers 6:20, 6/20, $6.20